This is a blog post I wrote a couple of days ago. I’ve wrestled with my conscience as to whether I should actually post it. Mainly because it’s only going to worry people. I promise we’re all OK, but I do need to vent sometimes. This, being my blog, seems as good a place as any to do that. So it comes with a <rant mode> warning. Naturally, it’s written with a mental voice I use specifically for ranting which sounds like John Cleese doing Basil Fawlty going off on one. If any of it makes you laugh, that is the correct reaction. It is meant, foremost to amuse, but also to inform a bit in that it does genuinely feel like that sometimes.
Since the entire tirade genuinely reflects the way I felt at the time I wrote it, I think that, in the interests of full transparency, I should publish it. And also because I haven’t written anything else, so here it is.
[Rant mode] Modern life is rubbish!
A famous Blur album from the 1990s but also, sadly, very true for me. Or perhaps if I’m honest I should say, I am rubbish at modern life.
Aroogah! Aroogah! Whinge warning!
OK so I’m going to go on a teeny bit of a rant here, because in many respects, I’ve had a pretty rough time of it lately, and since this is my blog, I can sodding well do what I like. But I have a burning question right now and it’s this.
Why am I so unsuited to modern life? Because despite having been invited to sit the mensa test, it counts for zilch since I’m as thick as pigshit when it comes to certain, more mathematical strains of logic. I write numbers back to front and upside down (and add them up that way too) I often mange to look up completely the wrong hymn in church—because I read the number back to front—and my organisational skills are negligible. I couldn’t organise a fart in bed but the most galling thing is that despite knowing this, I still haven’t hit on a way to learn how to be organised. It just … doesn’t.
Then there’s the Mum stuff. The perfect storm of every single thing at which I am shit. I have skills. Are they any use to me for this? Of course they’re fucking not, I need the jot tittle and iota of formfilling and box ticking down pat and frankly, I suspect I’ve more chance of getting to the moon by putting car springs on my feet and trying to jump than I do of bossing that sort of stuff.
Mum’s mortgage money is dwindling astonishingly fast so I am trying to get some help from the NHS with her care costs. Yes, I know, I’m in the UK and the NHS is supposed to provide healthcare free to all at the point of need and yes, it does … except that some aspects of healthcare are more free than others. When you have dementia, it’s classed as a ‘social’ illness and dealt with by social services and presumably mental health services. It is a mental illness but at the same time, it isn’t because the causes of dementia are physical; strokes, bleeds to the brain, or neural diseases like Alzheimer’s, Lewy bodies, Motor Neurone etc which are all caused by physical factors, even if medical science doesn’t always understand why they happen, it’s a physical factor, not a mental one, which causes these outcomes.
Unfortunately, the NHS changed its classification of dementia back in the late 90s and for a whole swathe of people it was too late to plan for any healthcare costs, they just had to hope they wouldn’t need them. Worse, if those people did try to offload some cash after diagnosis, they stood the chance of being had up for avoiding care fees which is called deprivation of assets and is considered to be a criminal offence.
Some folks were lucky and they didn’t get dementia or they died fairly soon into the journey. My parents weren’t. One of the diffiiculties is that, for example, Mum has a house and the logical thing to do, from the point of view of death duties, would be for her to make over the house to us but continue to live there but even if she does this in a way that is compliant with UK tax law, then, since her dementia diagnosis, it would be a criminal offence because that would be trying to leave something to her children rather than spend the last of her and Dad’s assets on the healthcare she was promised for free until it was too late for her to do anything about it. Oh, and because the fact she and Dad have spent around £900k on care fees, to date—that’s right, close to ONE MILLION QUID—one million quid I didn’t even know they had, it still isn’t enough because the bastards want to make sure they strip those assets thoroughly, family antiques, pictures, the house, it’s all got to be sold to pay for care costs, or you have to make over the house to the authorities if they are going to pay (there may or may not be a cap on how much they can take for this. I think it depends where you are).
Yep, if you want to be tax efficient with your will, or try to avoid paying every last penny you have in care costs and give something to your kids … well … if you’re dying of cancer that’s OK. If you have a benign front temporal lobe brain tumour that presents very similar symptoms to the ones Dad endured, that’s OK, but if your affliction is associated with dementia then no. I’m sorry. If you try to do it, then, it’s a crime. Remember people, the D in dementia stands for destitute, and as far as the state is concerned, if you’re not destitute by the end of it, they’ve done something wrong. You’re supposed to surrender everything to pay for your care fees, suddenly, it becomes an actual crime to leave anything for your children or grandchildren.
Because we’re lovely compassionate people here in the UK and when our government screws over our citizens it likes to do it properly. Dementia isn’t a long grinding and hard enough road on its own, oh no, the government and the NHS like to ensure they make it as shitty for everyone concerned as possible. Why help one dementia patient when with a few deft tweaks to the care system, you can ensure there are more and double the assets you strip from the afflicted. Twice the money. Chancellor rubs hands together. Excellent.
As you can see, I’m not bitter or angry about this. Not at all.
Seriously, though. I genuinely don’t give a shit about my inheritance, that’s gone, although I do care about my brother’s half and that he gets nothing as well. What does make me angry is that it’s cost me pretty much everything; the never ending, grinding awfulness of it all has sapped me of any meaningful ability to write books and with that my purpose. It’s cost me being a decent mother, it’s cost me being an attentive wife, it’s cost me keeping in touch with my friends and wider family because it’s such a massive drag on my mental energy that I can only just keep in touch with a few folks. I guess we could just stop with, it’s cost me my happiness in many respects, or perhaps my contentment because in terms of stress, time, sadness, love, pain and god knows what else, it’s blown away any semblance of concentration and mental capacity I had (yes! Stress gives you brain fog, who’d have thunk it). It’s cost my husband and son because they feel it too, and they’ve seen me cry, many times and in my son’s case, at far too young an age. It’s cost my brother and his wife and my nephews and niece just as much.
I fucking resent the price we, and thousands like us, have paid because the illness our parents have endured has the wrong name. It does, indeed boil my piss. Mwahahahargh! I try not to think about it too much.
And fair due, when I say they take ‘every last penny’ they do generously leave you the last 23k. Except they don’t—and it’s not—because there’s a sliding scale of help beyond that and the full package doesn’t kick in until you are at £14k … which, to put this in perspective, is about 9 weeks of care fees.
Anyway, the amount of form filling! As you know, I am always a tower of strength when it comes to form filling, says she, with deep sarcasm. Did I mention that looking after Mum’s finances, healthcare and general wellbeing is a perfect storm of every single thing at which I am shit? And so was Dad’s. And it’s been going on for years and years, and years. And I am so, so fucking tired of my entire life being about trying to boss an enormous collection of all the things I am emotionally, physically and mentally least equipped to do. And Oh Lordy I took McMini to a consultation with a counsellor today and we fleetingly touched on the whole dementia dementor that is sucking away my life and I actually nearly wept. It caught me completely broadside because I thought I was through all that.
Not quite. Clearly.
The other day, I was listening to a programme on BBC sounds about dementia and they were so fucking upbeat.
‘Do you know carers everywhere save the government over £11bn a year?’ they said (or something along those lines). ‘Aren’t you all marvellous?’
Yeh the same way clapping people is so much better than giving them a pay rise and we don’t save them the money, they take it from us.
And I was sat there in the car, bundling along the M25 (it was flowing well that day) shouting,
‘No! We’re not fucking marvellous you absolute pus wangle! We’re fucking desperate, and lost and we have NOTHING left to give and NOTHING left to fight with! And no-one fucking gives a shit! And while I’m shouting at the windscreen like this, worrying the person in the car next to me,’ MTM turns, gives the nervous looking woman in the nissan micra a thumbs up and waves. ‘Can I just mention what it costs US? Everything. Fucking everything. Let me repeat that! It costs us every. fucking. thing. Our social lives, our hobbies, our capacity for coherent thought, our health and in some cases our sanity or our actual fucking lives.’
OK so I appreciate that sounds melodramatic but sadly, it’s true. One demented relative, and you are surrendering to years of sleepless nights and brain fog. Think new baby for years, and years, and YEARS until the lack of sleep kills you.
In a horrible irony, do you know what the result of that level of stress, for 15 years, was for Mum? That’s right. Dementia for her too. What a kindly joy! Thanks God you absolute get. The woman who said, ‘I don’t really care what happens to me when I get old, so long as I don’t lose my marbles.’ is losing her marbles.
Thank you, you to whichever clusterfuck of cucking funts made that decision back in the 1990s because thanks to your intervention she has, indeed, lost her fucking marbles.
Bastards.
Yes! I’m sure I’m entitled to all sorts of benefits and help and Mum gets it, what there is, but I’m too exhausted to look into it. And when I do, it’s for people spending 36 hours a week on care. If you have a part-time job that you can no longer do because of the strain of looking after your demented relative, that means you’re not eligible. If you worked during the school day, you’re not eligible because that’s not 36 hours. It’s a fucking shower! And I’m just running a house, a care team and a life from afar. I’m not even one of the poor bastards at home doing it 24/7 with no let up, no relief and no fucking hope. Waking up every hour all through the night and trying to persuade their demented relative to sleep because they are so … fucking … tired. People with dementia can live a full and happy life but it costs their loved ones everything. And nobody gives a fucking toss.
Then there’s … ugh … other stuff. Other stuff is a bit patchy to be honest. Everyone has a Draco Malfoy (look it up if you don’t know) and McMini is no exception. There’s a kid picking on him at school and for a while a lad who was a friend at one point was joining in, which made it extra specially hurtful. The ex friend has stopped now, thank goodness, but the other lad has continued. Luckily McMini, who was bullet proof on that score, and then very suddenly, not bullet proof, seems to have rediscovered his armour and ceased to care about the Draco Malloy in his life. Long may that continue.
Though the school is being brilliant it’s been tough for him. Hence the counsellor (psychotherapist who does counselling) and I arranged for us to meet to see if a few sessions would help. Things are a great deal better but I still want rule in or our whether or not Mc(not so)Mini might need a few handy coping strategies. Mainly because I doubt I’d be here now, in quite the same form, had I not had a lot of CBT at the beginning of this fucking dementia nightmare. And while he’s coping fine now, the kid who picks on him is still picking on him. So I set up an initial session to meet and see if the counsellor could help.
The first session was on Tuesday.
I forgot.
Jesus, Mary, Joseph and their fluffy donkey. Fuck me but I’m a fucking dickwad.
You know what. A few years ago I did an intelligence test, the result was a bit like a spider with 8 zones of intelligence and scores for each. Basically, I scored a solid top 80%-90% in seven of the eight areas. However, in one area—numeracy and certain mathematical logic—I scored below 20%. In an IQ test I scored one point off genius level (on paper, I’m well thick on screen) yet for everything that matters in wrangling my and my mother’s day-to-day existence my fucking enormous teflon-head brain is of absolutely fuck all use. The only thing my intelligence achieves is a keen awareness of how lacking I am in the one single form of fucking intellect I actually need. There are people out there with such severe cognitive disabilities that they are unable to live independently who are smarter than I am in the only area that anyone counts.
All my life I’ve railed against the stupid fucking bigots who say that the only intelligence that counts is mathematical intelligence and discount everyone else whose abilities aren’t a carbon copy of their own as ‘stupid’ because they’re too unimaginative to see the worth in any other kind of intelligence. I heartily loathe those people who aver that only one kind of intelligence is the arbiter of all intelligence and that without it you are thick, much as I heartily loathe the way the morning people have managed to fit the entire world to the way they function and have convinced us all that being a night owl (a logical evolutionary step to ensure some of the tribe was always awake to keep watch) makes you some kind of morally bankrupt deviant.
Sadly, modern life and educational standards are set up for mathematical logic, and nothing else, and it’s amazing the number of people who, when I suggest that it’s possible to be intelligent without being mathematically intelligent, will agree but then basically say, no. Engineering and construction and most stuff runs on maths or is designed using maths they argue. Therefore our world is built on maths and it is the apogee of all intelligence. I completely get that. I get that it’s important.
But we don’t all need ALL the maths to just … you know … live. I mean, for starters, if everyone in the village has one kind of intelligence and is brilliant at building the bridges, who’s going to do the fucking cooking? Rishi’s barking plan about maths until people are 18 … well … it depends what they teach. But trying to get people like me to understand advanced trigonometry isn’t going to happen, no matter how many times you try and drum it into me. It’s just a waste of everyone’s time.
Nobody insists we all play an instrument to grade 8 level and shames anyone who can’t as an inferior or a second grade person. Some people aren’t musical. Nobody gives them any grief. Some people aren’t mathematical. Newsflash. That isn’t a fucking crime. Why this ridiculous insistence that mathematical intelligence is the only thing that matters? It’s bullshit! Surely, unless they want to be a theoretical physicist then, so long as a person can manage their finances, or parse a spreadsheet/find an expert they trust to do it for them that’s all they need.
Yes, we need to understand certain mathematical basics to get by but the way they go on. It’s like saying that only one colour matters or that only one musical note is important. And what will making people who are useless at something keep trying—and failing at it—do for their confidence.
‘You have so much to give, and so much talent but that counts as nothing because this one tiny facet of intelligence (that you’re shit at) is the only thing that matters.’
Is that a healthy message to send to our kids? From one who received it loud and clear at school throughout their entire fucking childhood let me assure you that it’s very much not.
The other day, when I forgot that session with the counsellor for McMini, I hated myself: truly fucking hated myself in a way I’ve managed to avoid since the CBT I did to deal with just this kind of negativity when I was first trying to look after my parents and navigate the absolute craptonne of admin they seemed to generate. Fact is though, I’m just a massive fucking white elephant. I know I am. Normally, I can look away and carry on living the lie that there is some actual fucking point to my existence but yesterday. No.
It’s so hard to be bright, really bright, in a whole arena of disciplines which, while perfectly valid, are discounted by modern culture as worthless, it’s even more frustrating to be smart, but, at the same time utterly, crushingly, mind-numbingly thick at the only subject by which the world gauges intellectual worth … and filling in forms … and admin. Oh I know it’s a them problem (and the fact that I care is a me problem) but it’s fucking galling. It’s not that maths isn’t important, it’s that not everyone is going to use it to an advanced level, not everyone will need to and more to the point, not everyone can. Making them try for years is just going to make them feel shit about themselves and as we all know, miserable people beget misery.
Actually if you want to appreciate what trying to force people to study something beyond their ceiling does just read this. Read this to see just how shaming people who are bad at maths makes them feel. Read this to see how giving people the impression they are stupid or somehow morally lacking, because they are less able at something you can do easily makes people feel.
It’s this idea that because some people are engineers or scientists and are using maths to define space and time, or build bridges, we should all be doing it. It’s like saying that every single person in existence should be made to write a book. It’s like saying, ‘oh we’re having a bit of trouble with the new covid vaccine, MTM why don’t you have a go?’ and being surprised and upset when I can’t crack it. It’s saying that we should all be carbon-copy geniuses (geniai?). It is, quite frankly, a bit fucking mental.
Most of us need to do a tax return, manage a budget and possibly manage a business. Yes, it’s important to know that. We all need to. But just as important is showing people who are less gifted at maths useful stuff like the kind of logic required to parse a spreadsheet that’ll do that maths for them.
It seems a trifle unfair that the zone of intelligence, out of those eight, around which my entire chuffing life revolves is the one in which I sit in the bottom 20% of the population; remembering things, administrating financial matters, filling in government forms correctly, dotting every I and crossing every T as stipulated, and in a timely manner, not being able to see how my situation fits a standard box, sitting waiting on hold because I’m over thinking it.
On top of that, my startling lack of smarts—in the one area which dominates my existence—makes life such an uphill struggle that I have nothing left for anything else after I’ve finished with it all. That’s really where this whole sticking eyes on things cropped up. Because I wanted to write. NEEDED to write, but after dealing with all the shite, getting it wrong, doing it again, missing bits off and cocking it up, all while watching my father and then my mother slowly disappearing in front of my eyes; all while taking their hands and walking beside them as we made our way together into the dark … after that I had nothing left in the tank. But an eyebomb takes a few minutes, little or no energy. I still get to be creative and it cheers me up.
Hence the marked absence of any new writing so far this year. Or last year to be honest. Of course, that’s also the reason I’ve been concentrating on the eyebombing book. Because it’s a different kind of creativity and an easy win … except I did an event on Saturday and there was very little interest in it live … so to speak which was rather worrying after it looking like people were interested online.
This is the first book I’ve talked about on social media where people have demonstrably shown an interest but … The price was definitely too high. Nobody was countenancing paying £18 for the hardback and £10 was clearly too steep for the paperback too. I might try a smaller size and see if I can produce it more cheaply and charge £7 for the paperback and £10 for the hardback. I guess the trouble is that it’s still too expensive to produce a colour photobook for a price that anyone’ll pay. It may be that I need to aim it at a more deluxe audience … gulp … but then the photos should probably have been better. Yeek!
Bummer. It looks like I might have produced yet another turkey.
Never mind. I guess you can’t win ’em all… or any of them, it seems. I should give up already, but that would be easy, and I NEED to create things … and I’m pig-headed. Onwards and upwards.
[/rant mode]
Here’s something a little lighter …
Something for that person who has everything: Eyebomb, Therefore I Am
Step into a realm where inanimate objects come to life and a simple pair of googly eyes holds the power to transform the ordinary into the extraordinary. This book invites you to immerse yourself in the whimsical and hilarious world of eyebombing; that art of sticking googly eyes on unsuspecting inanimate objects to unleash the joy within.
As you turn each page, you’ll find yourself smiling at the quirky personalities that emerge from everyday objects ranging from lampposts and traffic signs to automatic hand dryers and even dinner. The juxtaposition of the ordinary and the unusual challenges societal norms, reminding us to embrace new or different things, and look for humour in the unlikeliest of places.
Whether you’re a fan of street art, a lover of comedy, or simply seeking a joyous escape from the mundane, this photo book is sure to leave you grinning from ear to ear. You might even end up stashing a pack of googly eyes in our own pockets and having a go at eyebombing yourself.
To find out more and be informed when it goes on sale, join my eyebombing mailing list by clicking on this link:
Other self care activities. It was McOther’s birthday and he does a lot of wine tasting. Everyone turns up with a nice bottle, covers it up and then they all try it and try to work out what wine it is. It’s fiendishly difficult but fun and the trick is more about knowing what’s in another person’s cellar than actually tasting the wine. I think I mentioned this a few weeks ago, and that I have been knitting some bottle covers to replace the dodgy socks McOther and friends tend to use to cover up the labels. Anyway, I managed to complete five; one for a friend who was attending and four for his nibs for his birthday.
If you are looking to administer some self care yourself by reading for example … or listening, here’s something that might help; a free book.
M T McGuire Authorholic 