M T McGuire Authorholic

This is weird. I’m posting to wish everyone a happy Christmas, although it’s so long since I’ve written anything that there may be no-one here!

But also because, if anyone is still likely to read this, there’s something you need to know. You see … my mum died.

Yep, exactly three weeks ago yesterday, my brother and I became orphans. It’s sad in a lot of ways, obviously, but strangely, the main thing about Mum’s death so far has been that it really wasn’t sad. Poignant? Yes. Beautiful perhaps, and moving, oh yeh. But sad? No. Not really.

Mum on honeymoon taken by Dad.

I’m going to tell you about it, partly because it always sets my head straight to write these things down and partly because there’s an outside chance it might help other people.

It all started on Saturday 2nd December. The carers rang to say that Mum seemed groggy and was looking a bit blue. We agreed that she probably had a chest infection. I told them that Mum had left instructions for this and that she would want to be at home. They understood but also had to walk the line as professionals so they dialled the out of hours doctor service at 111. 111 sent a paramedic who wanted to take her to hospital.

The carers rang me and put the paramedic on so that I could say no. But when she spoke to me, she explained that Mum was not about to die but needed access to pain meds and antibiotics which she would not get until Monday and that while letting her die at home was one thing, and perfectly possible if she was about to die, this wasn’t actually a life threatening situation. She totally got about Mum’s wishes, her own mother having been the same. It’s just that. In her view, Mum was going to get better, anyway, ergo denying Mum access to antibiotics for two days was actually just a bit mean.

So I let her go.

This is the bit where I experienced some of the crappy aspects of the NHS.

The paramedic with Mum told me that casualty wasn’t busy and that I would probably get a call by 2.00pm but if I didn’t to ring at five. In the event, I rang at 2.30 and got nowhere but that was fine, they’d said five so I waited and tried again then. I got through to a nurse who told me she hadn’t been allocated to Mum but went and asked the nurse who was how she was doing. Apparently Mum was through triage and in ‘major’ whatever that was. They were waiting for a doctor to see her a second time and she was settled and comfortable. I rang again at 7 and failed dismally to get anywhere. Actually, I failed to get anywhere every time but every three or four goes, I’d throw myself on the mercy of the lovely ladies on the switchboard who would try to help. A couple of times they managed to get me through to different people who could ask a nurse to find out if there was any news or look at a database, which did, at least, have the basics of were Mum currently was in the system.

Nobody would answer the phone without help from Becky and Wendy on the main switchboard who deserved a medal because they were fucking golden … and later, in the night, Jacky.

A bit like the bit in Red Dwarf where Rimmer says, ‘You can’t scare me I’m a coward! I’m already frightened.’

The only actual doctor I spoke to in that time was an arrogant bastard with the bedside manner of a particularly unsympathetic cyberman. I pity anyone in dire straits, in casualty, who got him. He told me to get off the line because he had an urgent call coming in. The fucking knocky prick. I asked him how I was supposed to find out about my Mum. He told me I’d have to go back to main. I asked what the hell was main? He said that was the main switchboard. I asked him how long he thought I’d been trying to get someone to answer the goddamn phone and why, having finally made this major breakthrough after twelve fucking hours, he thought it was fair to ask me to go back and start again (only without the swearing). He said tough and hung up.

So that was that.

I went back to ‘main’ and threw myself on Becky’s mercy (or it might have been Wendy). I explained that I lived two hours away that my mother was seriously ill but I didn’t know if she was just seriously ill, or dying and NOBODY WOULD FUCKING TELL ME. I told her I’d been trying to get news on Mum for nearly 12 hours, that she was a dear person but she had dementia so she might be frightened and confused and no-one she knew was with her, and that I’d been told she’d be there for a couple of hours … AND that, had anyone bothered to tell me how long they were actually going to keep her sitting around on her arse with … whatever it was that nobody would confirm or deny to me was wrong with her … I would have jumped in the car when it happened and been with her from about eight bloody hours ago.

Except that, also without the swearing. Indeed, I was actually really polite about it, but laid it on a bit thick because I did want her to hoist in that I was only asking all this because I was desperate. She managed to find a member of clerical staff in casualty who was prepared to answer a phone and able to access the database. She made me wait while she spoke to the woman and told her she had to talk to me. Then I was put through and I found out that Mum had been admitted with a chest infection and was now in the emergency level. I said nobody had called and this lady said the next of kin was listed as Dad. I said I was a bit surprised as he’d died three years ago and Mum had been to hospital since, and she said, get this, ‘Oh, I see. So you haven’t changed the record.’

I? That’s right. It was all my fault. I pointed out that I’d given the paramedic my number and she said that no-one had passed it on. Since she was actually prepared to speak to me and give me information, I didn’t get as antsy as I felt or ask her how come the database hadn’t been mentioned the other time Mum had been to hospital since Dad had died, or why this was suddenly my fault.

Finally at 9.00 pm I managed, with the help of Jackie, another lovely switchboard lady at the hospital, to talk to a nurse on the emergency floor. Mum’s nurse was on her break but this one was kind enough to go and find out how she was for me. She also apologised and said that I’d probably have to ring the following morning to get any sense out of anyone. She confirmed that Mum was admitted, receiving treatment, sleeping peacefully and in a bed. Yes it was serious but no it wasn’t life threatening. So there was that.

Mum in the pink jumper in the chair at the back celebrating, being 90. The reason all the other chairs look small is because those blokes are all over 6ft. My uncle there on the right, he doesn’t sit down, he folds up.

It took until 2 o’clock on Sunday afternoon to get proper news of Mum but at least they were nice about it this time. She’d had breakfast and was responding well to the antibiotics but would probably be going up to a ward rather than straight home. The nurse also told me that Mum had been sleeping most of the time so probably wouldn’t have noticed time passing or got bored and confused the way I’d feared. Her care team also said that. One of Mum’s lovely care team went in to see her and phoned me so I could have a chat to her, which was wonderful and a huge relief as she was very much herself and, if anything, a bit more switched on than usual.

I went down on Monday to see her. At this point we were still expecting to move her so I popped in at her house. The gardener was there and wondering what had happened so I had a chat to her and I discovered the carers had looked out some chicken thighs for Mum’s lunch on the Saturday so I cooked them in the oven for myself and roasted a bit of cauliflower. I decided I’d have cauliflower cheese next time I was down (Wednesday). There were quite a lot of chicken thighs but I cooked them all and gave the gardener some to take home.

When I got to the hospital, Mum was in a ward. And this is where the NHS was absolutely bloody golden. Hats off to Byworth Ward. They were lovely. Yes, as compassionate, kindly and attentive care goes they absolutely smashed it out of the park. The staff there were wonderful. Watching them look after some a lady with quite challenging dementia they were so patient and so sweet with her that it made me want to cry.  When I arrived, the first thing they said was, ‘how lovely is your Mum?!’ the second thing they said was sorry for the way I’d been kept in the dark. They said Mum was knackered and sleeping a lot but that she’d been very chirpy when she’d arrived on the Sunday afternoon. She woke up enough to be pleased to see me and then slept most of the time but that was fine, because she knew I was there, so we just chilled together. I’d brought my knitting and spent a couple of hours hanging out with my mum, knitting, relaxing a bit actually, patting her arm every now and again so she knew I was there and chatting to her when she woke up.

The staff told me that my phone had no voice message and because it didn’t say it was me, if someone did ring and I didn’t manage to pick up, they couldn’t leave a message because it would breach confidentiality rules. This was absolute news to me so thanks O2 for your arbitrary decision to delete my voice message. I can only assume it got deleted when I renewed my contract but the Vodafone one never used to disappear so I wasn’t ready for that. Weird. I recorded an answerphone message as I sat by Mum’s bed.

One of the care team went in on Tuesday and I visited again on Wednesday with my brother. I made us a cauliflower cheese and added some macaroni, mainly so my brother would have something to eat for supper as he was staying over, but also because at 6ft 4, he’s a big unit, so he does eat a lot. Mum was much perkier but still a little frail and sitting in a chair by the bed. She was still quite tired and a bit confused, but the staff were lovely and she seemed cheerful, so I felt confident that she was in good hands.

My brother visited again on the Thursday and he thought she looked even frailer at that point but the prognosis was still that she’d get better and leave and certainly that if it went the other way, she’d be in there for a while before anything happened.

I cocked up Friday, so she didn’t have a visitor, and the person I’d arranged for Saturday was one of the care team and couldn’t make it at the last minute because one of her other ladies was ill and she had to stay with her. I made doubly sure someone was going on the Sunday and got ready to go down on the Monday either to visit or help her move.

Sunday morning, as I was getting ready to go warble in the choir at church, a doctor from the ward rang saying that Mum was very ill. I explained that I was over 2 hours away, 3 in that day’s weather and that my brother was 4 hours, how bad was it? Did we need to come? The doctor said it was a bit up in the air but that if she carried on deteriorating the way she had over night the outlook was not good. If the worst did happen, and I wanted to see her, I should come now.

I rang my brother who was about to attend his goddaughter’s confirmation in Wales and we decided that since he was outside the church, he’d better carry on with that and come after.

As I joined the M11 it ground to a halt. The whole journey was a bit like that. Oh and it absolutely pissed it down, it was more like driving a submarine than a car. I drove faster than I was comfortable with but I still didn’t exceed 60mph. It was that soggy and the roads that waterlogged.

A still from my dashcam in one of the clearer bits …

Luckily in the many bits where the traffic stopped, it was just caterpillaring as it slowed for patches of extra heavy rain. As I joined the M25 from the M11 the doctor called again to check we were on our way. I explained that we were and she said that Mum was fading quite fast. Which was a bit stark.

I thanked her and then remembered that I’d booked Mum holy communion, so I rang the ward and asked if they could get the chaplain to give her the last rites, instead, as it was important to her. They did and Mum was awake and conscious, and bless her heart, still thinking of everyone else first. She gave the chaplain a message to give to the ward staff. She said that her son and daughter were on their way and if she went before we arrived to please tell us not to worry because she’d be quite alright. God love her. I didn’t find this out until later but it was a wonderful thing to say and even more wonderful that after two years of not being quite sure, most of the time, what our relationship with her was (only that she loved us) that she knew exactly where I and my brother fitted in. They gave her a cross and taped it to her pillow. The chaplain sent an apology via the ward staff that they are all stamped ‘Bethlehem’ at the moment because it’s Christmas. It’s on my desk.

The cross …

There was a bumpy moment when one of the carers rang me. I was over the bridge stuck in a traffic jam near Clackett lane by this point, pretty much in the exact same spot where, three years before, as I sat in a similar traffic jam, the same carer had called me to say my Dad had died.

However, luckily, this time, it was just to say a group of them had arrived and would stay with Mum until I got there. The gods were smiling, the traffic kept moving and I kept creeping closer to the hospital. Would I make it? Would my brother? I had no idea.

The car park at Worthing Hospital is notorious for filling up extremely fast. On the Wednesday, when I’d visited with my brother, I’d noticed a spot where I could use the raised surface of speed bump to mount the kerb and get my car onto a small patch of grass, next to a wall where it was out of the way. Yes it would get clamped but it wasn’t actually blocking anything so I could Break The Rules to save time if I had to, without being a selfish bastard. There are advantages to driving a car the size of a peanut.

When I arrived on that Sunday afternoon, at 2.30, the car park was absolutely rammed. I didn’t even bother to scope for legitimate spots. I headed straight for my kerb mounting area only to find that there, right beside it, was a single, free legitimate spot. I flung the car into it and ran for the ward, saying a small prayer of thanks to the almighty as I went and then giggling because I remembered that Wendy Cope poem, ‘Jesus found me a parking space! Bang the gong and praise Him.’

The carers were there, I said hello and then I Did The Thing. Yes, like Dad, my poor mum had to sit through me telling her what a fucking legend she was and how lucky I was to have her as a Mum. And yes, I cried because … tension … and also relief that I’d made it to say good bye. And because I couldn’t help it. She laughed and said, ‘Oh Mary!’ and I laughed too because I was being a fecking eejit and we both knew it but at the same time, I meant it and we also both knew that because it was the last time I’d get to say it, it was important that I did.

So then the staff asked about treatment. Did I want them to give Mum more intravenous antibiotics? I had plenty of time to think because her next dose was due at 11.00 pm they told me.

‘Will it make her better?’

‘No, I’m afraid not. But some families prefer to have more time with their relative.’

I remembered how Mum had been when she’d had pneumonia in 2012. She’d told me afterwards, that it was ghastly and that she’d felt terrible and if Dad hadn’t needed someone to look after him she ‘would have gone then’. Her words.

‘Will she suffer, will she be in pain?’ I asked.

They explained that she would feel short of breath and feel tightness and pain in her chest but that she could have morphine for that. I remembered a friend once telling me that having pneumonia was like trying to breathe through a straw. It didn’t sound pleasant and I didn’t want her to have to put up with any more of it than was absolutely necessary.

‘So basically, are you saying antibiotics won’t do anything but she’ll just take longer to die, so she’ll be in pain for longer?’ I asked, just to check.

A beat. ‘Yes.’

‘Then, if it’s not going to help, that’s just prolonging her suffering. Please don’t let her suffer any more than she has to. This is about making her comfortable and relaxed. Plase stop everything that is extending her life and just carry on with things that are going to ease her pain or help her breathe.’

So they took out the drip, because it wouldn’t help her dry mouth and she’d be more comfortable without the cannula in. They kept the oxygen because that was helping and they told me they would give her morphine as soon as she or I asked. They said they’d carry on turning her because that would ease the pain and obviously they’d keep changing her pad.

She was breathing through her mouth and it was drying out. The carers showed me some ointment to put on her lips with a nice brush thing that would feel pleasant and explained how to wet the inside of her mouth with tiny bits of water from a cup, or a toothbrush. Then they went.

Mum wanted me to make sure that the people in the care team who joined her after she made her will got the same as the others, and after they’d gone, I promised her I would see them right.

She took off the oxygen line and tried it without for a bit but didn’t like it and decided to put the line back in. I helped her do that and they fixed it up for me so it was working, but at a lower pressure which wouldn’t dry out her throat so much.

She was very sleepy but would wake up for a few minutes here and there and I’d tell her that I loved her. While she slept, in case she was drifting, half awake, rather than sleeping, I’d reminisce about things we’d done as a family; holidays, day trips, parties and of course, the time she and I had turned out a perfect apple suet pudding together … on the kitchen work surface, because we’d missed the dish. And how my husband came in and caught the pair of us, crying with laughter like naughty kids, as we tried to fix it. Mum was holding the dish under the edge and I, with rolled up sleeve, using my forearm as a giant spatula, was attempting to coerce the pudding across the formica surface to the edge, the plan being that it would make a short fall into the dish, hopefully landing the right way up, without compromising its structural integrity.

It hadn’t really bothered to get light that day, but darkness closed in outside anyway. Mum slept more and was awake less as the day wore on. I kept getting the water wrong. I used the wrong cup and made her cough, then it kept running out of the side of her mouth, down her chin and onto her chest. So I spent a lot of time apologising that it must be horrible and cold and making jokes along the lines that I was a shit nurse and that I wasn’t going to be admitted into the Royal College of Nursing any time soon. She laughed at first and then as she became weaker, it was a smile and finally just an imperceptible lightening of her face.

At one point she tried to sit up a bit and speak, so I put my arm round her and propped her up so she could. She said, ‘I love you darling, I love you very much.’ I just hugged her and told her I loved her too and that she was brilliant. That was the last full sentence she said to me.

Her voice sounded incredibly croaky and I remember thinking that she must have a horribly sore throat and that I must step it up with the water, which I did. We had a bit of a giggle when they gave me her shepherd’s pie to eat because she was too weak to swallow safely. I went to the loo and when I came back one of the nurses had left some packets of biscuits for me. They got the tea trolley in and gave me a cup of coffee. They were absolutely lovely to me (and my brother when he got there) as well as to Mum.

Mum was very peaceful, the staff remarked upon how relaxed and unafraid she was. They’d given her a little cross when she’d had the last rites or Extreme Unction as I prefer to call it because that sounds like some kind of superpower and is much funnier. I kept doing the water thing, at first asking if she wanted more each time she woke up and waiting for the, ‘yes please,’ but then I just put it into her open mouth with the toothbrush. She would usually suck it but towards the end she hadn’t the strength to do that.

My brother arrived and she tried to sit up a bit. I think she wanted to say the same thing to him as she’d said to me. He doesn’t think so, but I do. I missed my cue though and didn’t twig and pass it on for her. Mainly because I thought she was also in pain, which my lovely bruv thought, too, and I was concentrating on that. I suspect she had lost her voice by that time. I took her hand in mine and asked her to squeeze if she wanted morphine. She did. So we got some for her.

We held her hand, and stroked her face and told her we loved her, did the water thing and the lip stuff and chatted to one another. By 1.30 am, my brother suggested that we go back to the family home and get some sleep. I didn’t want to leave her but she seemed very peaceful, her breathing very regular, and as my brother pointed out, if it took a while and we were with her the next night, we’d need some proper zeds in for when it really mattered.

We consulted with the nurses who said it would be a sensible decision and that’s when they passed on the message she’d given them, via the chaplain, that we were not to worry if she died when we weren’t there.

There were some other quite challenging patients, people with Alzheimer’s with disrupted sleep patterns and I explained that while I had every confidence that they would make regular checks on Mum, if she was in pain and called out, they might not hear her straight away, or they might be with one of the other ladies and not be able to come at once. We agreed she should have some more morphine as that would see her through until 7.30 am and we’d aim to come back then.

Sometime around five they turned Mum and one nurse went off while the other primped her pillows, did the water in the mouth thing and made sure she was comfortable. She noticed Mum’s pulse was quite weak so decided it might be time to call us in. She went to get the other nurse to see what she thought and when they both came back, Mum had died.

Sunrise Over West Sussex, 1996 by Christopher Aggs, Worthing & Southlands art in hospitals project

We went into the hospital to see her, and I dunno, give her a hug one last time while she was still warm and it felt as if there was still someone there or at least, hovering close.

It was 11th December.

My brother and I spent three days at Mum’s house, going through her stuff. We did the desks first, which was hilarious. Mum had kept all our school reports and we found all his letters home from boarding school asking why I never got a star at my school, ‘Mary, you got full marks for that test but your handwriting is too untidy to give you an A so I’m afraid that’s an A minus, no star for you this time.’ (Or any other fucking time to be honest because my handwriting was always too messy for me to get an A. But that’s what school was like in those days. Luckily the only people who didn’t value the neatness of my handwriting over what I actually wrote were the examiners who marked my O and A level papers but I digress.)

We also got very giggly about Mum’s photos, we used to have to wait ages for her to take one and then she had a tendency to line it up wrong, that was mostly the camera rather than her but bless. And then we had an old friend round for dinner. It was interesting trying to cook vegetarian, because though my brother is, I’m not at all, but we ate a lot of roast veg and we had cheese and eggs with us so all was dandy … and we’d gone down there equipped with wine, which was great.

It being Christmas post, there was fuck all I could do about telling anyone by that time other than phoning a lot of people, including the local undertakers who knew both my parents well (Dad was church warden and Mum did the flowers) and who are lovely. Turns out there is a new vicar, who comes over as one of those rather difficult Christians who’s rather big on the ‘thou shalt not’. How he’s ended up at an inclusive church with its roots in the Oxford movement is beyond me but hey ho.

Luckily Mum was too infirm to get to church by the time he arrived and he never visited her, so he’s no clue who she is. As a result, he won’t be having any input into her funeral other than issuing the odd bizarre diktat to make sure we all know that the church building belongs to him and he’s in charge. The rest of the team are as lovely as they ever were. They quite clearly loved Mum to bits and it’s one of them who is doing the service. So that’s grand.

So there we are…

Looking back on it, there’s a waiting phase before death, a kind of state of grace people go into and if I’d thought about it, I’d have seen that Mum was in that on the Wednesday, I’d have known, and maybe visited on the Friday, too. Maybe … I dunno.

Am I sad? Well … yes but also … no. My overwhelming emotions are gratefulness and joy that I had such lovely people as parents. Mum was totally OK with dying. She’d told me less than five weeks previously, a propos nothing much, that I did know, didn’t I, that if she died, she’d be quite alright and I was not to worry. Other good bits … having been really quite batty for a week or two, she’d been very switched on for my last five visits. And even when batty her perssonality and generally lovely demeanour was unaffected.

Regrets? Not really, I wish I’d got the cue to ask her if she was trying to tell my brother she loved him, and I regret that my last two visits to her at home I was running round like a blue arsed fly, first showing some people over the house, then with the photographer (both times pretending they were surveyors come to look at the roof). I’d been going to make sure that on the last visit I really made up for that, but she was in hospital that week.

The fact is, Mum was about to leave her home forever and go to Shrewsbury, because it was time, and because we’d run out of money and had nothing left to pay the care fees other than the house. Mum and Dad’s furniture was all brown stuff and is therefore worth about five pence a pop if that. If we’d sold everything in the house, we might have covered care fees for a week or two. Instead she died while she was still living in Sussex, in the same house (even if she wasn’t there at the time).

Other positive things … Well … the move might have worked, but if it hadn’t it would have broken my heart as well as Mum’s. I’d have had a hard time coming to terms with it, even though there was no other option. As it is, I didn’t have to break my word to her. I didn’t have to move her. I never had to hurt her and I never have to worry about her any more. We get to do her funeral on home ground, where the highest numbers of the people who knew and loved her have the easiest access, if they want or are able to come and with Britain’s loveliest undertakers. I am incredibly grateful for that. And although she was still living in it when she died, we had conditionally accepted an offer on her house, which might help hurry up the paperwork.

It doesn’t really feel real. I suppose it won’t for a bit. But it did feel peaceful, and full of love and right. For the first time since 2012 I can say that I know, categorically, that both my parents are absolutely alright. That’s about the best Christmas gift of all.

Meanwhile at home, I’d bought a handful of presents but otherwise there’ve been no presents, no cards, indeed, not much of anything as we were busy taking anything of value out of the and into storage. We’ll have to put it back to get it valued for probate at some point but at least, for now, it’s safe. And all the Christmas malarkey? Well … there were some crackers in Mum’s cupboard, so my brother and I had a box each. I sang in the choir for midnight mass and we relaxed. McOther gave me a book to wrap up and put under the tree for him. He’d already given me a fitbit and McMini had already spent his Christmas money on stuff that arrived by post the previous week. He received a hefty wodge of christmas money from his grandparents but that was it.

When it comes down to it, all the gifts and the trimmings and the shit aren’t really so desperately necessary to make it work. It seems the Beatles were right. Love is all you need.

And on that rather schmultzy and trite note. Happy Christmas … a day late … because … this is me writing this, after all.

The end

Congratulatinos if you’ve made it this far. Weighing in at a hefty 5k, there are novellas out there and entire film scripts that are shorter than this post.

If you want some Christmas books, I’ve two available for your delectation; one reduced drastically to 99 American cents or British pee and another free. You can find them, in ebook or audiobook format until December 30th on this here page here:

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